My Migraine Journey
Updated: Feb 3, 2020
Honestly, it can be hard to talk about your health. Especially when explaining the wide scope that is chronic illness. If someone has a question, I never mind answering. However, talking about everything well frankly it's overwhelming. Chronic illness is overwhelming.
“The first time I got a 'classic' migraine I honestly thought I was dying.”
My 'journey' began when I was a sophomore in high school, I was about 13 or 14 years old. Initially, I was just diagnosed with endometriosis. It was a straightforward plan: Find the right birth control, take some supplements, work on diet, keep track of symptoms.
Then came the migraines.
My first migraines were abdominal in origin, so a stomachache x100. Once I got settled with a neurologist and on medication, they gradually calmed down. The first time I got a 'classic' migraine I honestly thought I was dying, little did I know that was just the beginning.
I couldn't eat, get out of bed, listen to noises, have the lights on. I had isolated myself to under the covers of my bedroom and my mom would bring me egg whites and strawberries to try and eat. Eventually, it passed, and another came, and another, while all the time there this dull aching feeling in my skull. I'm sure it's a familiar story to many of you reading this.
Being given the diagnosis of Chronic Migraine and New Daily Persistent Headache is kind of like being put thrown into the water, not knowing how to swim. You barely recognize your body anymore, it's not familiar, nor are the words coming out of the doctor's mouth. So you have to become familiar, you have to grow up so fast and furious because chronic illness doesn't give you a choice. I struggled to reach an even point for many years, and I did. I was as stable as someone with chronic illness can be.
The past 3 years I have been wrestling new multiple new diagnosis's and the treatments, symptoms, and overall life changes that come along with them. Something that I will dive into in a separate post. What I can say about my experience, my life, is this...
You are not your illness. It is a part of you but is not the deciding factor in who you are and what you can accomplish.
Chronic Illness is chronic, it is an up and down, side to side daily battle. Sometimes you don't win, and that's okay!
Honestly, it sucks sometimes. I mean really it does but, it will lead you to some of the best people and teach you lessons others will never learn.